Table 4 Participant reported instruments

CAT Score Mean (SD)

15.96 (7.73)

14.77 (7.79)

13.48 (7.21)

NIH PROMIS Score (T score)

 Physical Limits Mean (SD)

46.60 (8.60

45.25 (7.62)

45.32 (8.96)

 Fatigue Mean (SD)

53.08 (10.09)

51.25 (9.73)

50.63 (10.16)

 Patient Activation Measure

Mean (SD)

71.68 (14.00)

74.32 (14.31)

77.94 (13.44)

 Modified Medical Research Council Dyspnea Scale (mMRC) Mean (SD)

1.18 (1.05)

1.14 (1.04)

1.04 (0.98)

Patient Activation Measure Level 1–2 (Score 0–55)

 CAT Score Mean (SD)

17.22 (6.02)

14.43 (3.99)

15.67 (5.13)

NIH PROMIS Score (T score)

 Physical Limits Mean (SD)

44.67 (3.62)

44.00 (4.64)

48.87 (7.39)

 Fatigue Mean (SD)

57.23 (8.64)

49.89 (7.26)

58.85 (9.92)

 Patient Activation Measure Mean (SD)

45.58 (9.31)

56.78 (14.39)

60.00 (17.54)

 Modified Medical Research Council Dyspnea Scale (mMRC) Mean (SD)

1.12 (1.25)

1.00 (1.41)

0.80 (1.30)

Patient Activation Measure Level 3 (Score 56–67)

 CAT Score Mean (SD)

17.77 (7.19)

16.79 (7.74)

14.67 (7.08)

 NIH PROMIS Score (T score)

 Physical Limits Mean (SD)

48.88 (8.30)

47.10 (5.91)

47.22 (7.19)

 Fatigue Mean (SD)

55.90 (7.77)

54.36 (8.34)

52.72 (8.12)

 Patient Activation Measure

Mean (SD)

63.93 (2.93)

68.13 (9.65)

73.57 (8.46)

 Modified Medical Research Council Dyspnea Scale (mMRC) Mean (SD)

1.23 (0.90)

1.43 (0.98)

1.25 (0.62)

Patient Activation Measure Level 4 (Score 68–100)

 CAT Score Mean (SD)

14.67 (8.16)

13.85 (8.27)

12.68 (7.59)

NIH PROMIS Score (T score)

 Physical Limits Mean (SD)

45.56 (9.15)

44.54 (8.66)

43.78 (9.76)

 Fatigue Mean (SD)

50.77 (10.98)

49.93 (10.52)

48.08 (10.20)

 Patient Activation Measure

Mean (SD)

80.84 (9.25)

80.34 (12.63)

82.82 (11.49)

 Modified Medical Research Council Dyspnea Scale (mMRC) Mean (SD)

1.16 (1.12)

1.02 (1.00)

1.00 (1.05)